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a still of Celine Dion from her upcoming documentary "I Am: Celine Dion" showing Celine sitting in a dark room, mid speech

Watch the Emotional First Trailer for ‘I Am: Celine Dion’

Celine Dion is opening up about her health struggles in the emotional first trailer for her documentary, I Am: Celine Dion. 

Set to some of her most iconic hits including “It’s All Coming Back to Me Now”, the trailer gives us a glimpse at the superstar’s life since she was diagnosed with Stiff Person Syndrome. Through tears, she recounts how much she loves singing and how her world has changed:

“My voice is the conductor of my life. When your voice brings you joy, you’re the best of yourself. I need my instrument,” she begins.

“It’s not hard to do a show, you know. It’s hard to cancel a show. I’m working hard every day but I have to admit, it’s been a struggle. I miss it so much. The people. I miss them. If I can’t run, I’ll walk. If I can’t walk, I’ll crawl. I won’t stop.”

 

 

We also get to see some archival footage and home videos taken throughout Celine’s decades-long career.

According to Prime Video, the film “gives us a raw and honest behind-the-scenes look at the iconic superstar’s struggle with a life-altering illness. Serving as a love letter to her fans, this inspirational documentary highlights the music that has guided her life while also showcasing the resilience of the human spirit.”

In a statement announcing the documentary earlier this year, the 5-time GRAMMY winner said: “the last couple of years has been such a challenge for me, the journey from discovering my condition to learning how to live with and manage it, but not to let it define me. As the road to resuming my performing career continues, I have realised how much I have missed it, of being able to see my fans. During this absence, I decided I wanted to document this part of my life to help others who share this diagnosis.”

 

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Celine first went public with her diagnosis in December, 2022. She posted a video for fans explaining more about the neurological disorder: “While we are still learning about this rare condition we now know this is what’s been causing all of the spasms I’ve been having.”

She went on to share that Stiff Person Syndrome has affected “every aspect” of her daily life including walking and using her vocal cords.

According to the Mayo Clinic, the condition is also known as Moersch-Woltman Syndrome. It’s a rare disorder of “motor function characterised by involuntary stiffness of axial muscles and superimposed painful muscle spasms, which are often induced by startle or emotional stimuli.”

Earlier this year, Celine attended the GRAMMY awards as a presenter and received a standing ovation.

“Thank you all. I love you right back,” she said at the time. “When I say I’m happy to be here, I really mean it from my heart.”

I Am: Celine Dion will be released worldwide through Prime Video on June 25, 2024.

(Feature Image Credit: Prime Video)

Nehal is an award-winning news presenter, author of "A Kids Book About Kindness Online" and founder of CelebrityKind. She has dedicated her career to creating connected and healthy spaces in the media. When she's not writing, you'll find Nehal hanging with family, dancing to Beyoncé, interpreting Taylor Swift lyrics or watching old eps of Oprah.